"When God wants to do something great, He starts with a difficulty. When God wants to do something truly magnificent, He starts with the impossible." - Armin Gesswein
Thanks to Eric creating the “blog” for Christi I was able to post nearly daily updates in regards to Christi’s health and events. (I just wish there would have been “good” news to post.) Providing strength and support, kind humans left sweet comments on the blog which were comforting to know others were praying for Christi from some far away places (like my OSU Faculty Advisor, currently at her school (Yeppers, named after HER!) in Gahanna and another post from South Africa! Simply amazing!) The most surprising and heartwarming one came from
“So there I was. Eating an overpriced salad at SaladWorks on Penn's campus, on my lunch break. I look out the window, and I see a woman. I immediately think, "hey, that looks like Angela Thomas." (Given, I only know you and your family through Christi's website.) Then I think, "no. they're at CHOP getting some protein fusion." Did I mention that I obsessively read your website? Then I take a good look at the skipping little girl by this woman's side. Though I never actually met her, I know this is the famous Christi Thomas. I gave a big smile and remember feeling thrilled that Christi and her mom just walked by me during lunch! I literally walked back to work with a smile on my face. Needless to say, I have been nervously waiting for each update, hoping for good news. I was so sad to read this last update. I continuously pray that this is a bump in the road that can be overcome and nothing more. Your family is in my thoughts daily.”
Wasn’t that so sweet?!! It was a very emotional week and I do not believe that this coming week will be any different most likely worse! On Sunday Christi seemed fully recovered from the treatment. Monday was grand! Then on it all started falling apart on Tuesday night.
Tuesday during Christi’s ballet class I received the call from the hospital with Christi’s blood counts. My heart dropped when I learned her LDH level (The one that measures the tumor activity) had soared to an unbelievable 908 (normal range: 100-190). That was nearly double what it was at original diagnosis. When I said, “Oh no.” I heard back, “Yes, we’ve already called
Thursday she was interviewed by a lady who came down from
Later that night my heart really fell and unfortunately, it’s still there. After school I noticed she kept rubbing the top of her head. When I asked her about it she said, “Theresa found a bump on my head at school today.” When I asked her if it hurt she said, “That one doesn’t but the little ones do.” (Ones??? YIKES!) I felt them and then called Shayne and said, “I’m sick and you’re about to be.” (New “lumps” isn’t anything you want to discover when you’re fighting cancer.) We waited for about 24 hours debating what to do and hoping it’d all just go away. Unfortunately, her eye sometimes both, continue to look “funny” puffy and a bit bruised. (My NB friends know how NB likes to attack the eyes’ orbits so of course that is a worry.) I believe I’ve sobbed more this past week than I have in the entire 3 and a half years. I’ve tried to be so strong for so long but I believe the horrendous news caught up with me and is bringing me down. Tonight we counted four lumps with the latest one being on the top of her upper forehead disgusting on such a beautiful girl. How I hate this beast and pray it doesn’t take her sight away too as it loves the orbits.
When she had to come home from school early (Thanks,
Saturday morning I booked our flights to
Tonight she wanted to go ice skating so a friend was dropped off and we had a great time. The “Littlest Pet Shop” toys continue to be the girls’ crazy cutest little animal toy figurines.
With tears, (And I didn’t have the energy to proofread this so please accept my apologies!)
Christi’s Joke (Complements of Angel John Taggert’s family Tamara thanks for your sweet call today!) What does a kitty order at McDonald’s? A Happy Meow!
What’s Next? Exam with Dr. Maris, blood work, MIBG injection and MIBG scan on Tuesday and Wednesday in
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Shayne & Angela Thomas: firstname.lastname@example.org